Endometriosis, support and community

Real Stories Shared

It’s no secret that women’s health - emotional and physical - is an area in need of more research. And one group of women who can attest to that fact are those navigating endometriosis. Whether they’ve waited a decade for diagnosis, or been left baffled by the lack of counselling offered following major surgeries, the path with this condition can be a murky one. So what is endometriosis? It occurs when cells that are meant to grow in the uterus grow in other parts of the body. These cells respond to the body’s menstrual cycle the same way they would in the uterus, accumulating blood on a monthly basis, then breaking it down and shedding it during menstruation. The problem? This causes inflammation, pain and a buildup of scar tissue in places such as the fallopian tubes, the bladder and the bowel, which can affect wellbeing, day-to-day life, and long-term health and fertility.

Saschan Fearon-Josephs, 26: Endometriosis



Saschan was first diagnosed with endometriosis in 2015, and two years later discovered it had spread as far as her bladder and bowels. Having also undergone surgery to remove a large pelvic cyst – and with it, the majority of her right ovary and fallopian tube - she says the lack of counselling and support offered has been one of her biggest challenges. Starting her own blog, The Womb Room, and creating a community of people who have had similar experiences has been “crucial” for her.

“It’s like you have to create your own family… once you’ve armed yourself with that knowledge, it’s a lot easier to find other people who have similar experiences and share information with them so you’re learning from each other, and things they’ve tried.”

Watch our video with Saschan and for more information on endometriosis visit

Royal College of Obstetricians and Gynaecologists 

The Womb Room

Sweetening the pill

Amee Leigh Atkins, 25: Endometriosis



It took eight years for Amee’s endometriosis to be diagnosed. While she initially found the revelation overwhelming, she has since curated a unique set of techniques to help her manage the condition. They include natural therapies such as acupuncture, and beneficial diet changes uncovered through her own research. Her message for all women is the same: tune in to your body, because you’re the one who knows it best.

“I’ve learned to listen to my body on every base level that I can, and to check in and see if there’s any little signs, any triggers. My piece of advice would be to track your symptoms, so you can notice any patterns.”

For more on Amee’s story, watch above, and for more information on endometriosis visit:

The Endo Co

Womanhood HQ

‘The Doctor Will See You Now: Recognising and Treating Endometriosis’ - by Tamer Seckin

Laura Owen-Wright, 32: Endometriosis



Laura admits that her journey with endometriosis has dealt a serious learning curve. Before her diagnosis she had never heard of the condition and pinned her monthly mood swings and physical struggles down to her personality – something she says had a significant effect on her confidence. While she suspected her hormones were playing havoc, she didn’t understand how to rebalance them. She says greater knowledge can be life-changing.

“I look back over the years and think, what could I have achieved if I had just been in balance? No one cares about that stuff and it’s so important. How much more productive could we be… if attention was given, especially to our cycles. There’s so much wisdom in it.”

For more of Laura’s story, watch our chat with her and follow Laura's story here http://lauraowenwright.com/


More in the Real Stories Series:

UNDERSTANDING YOU: HORMONE CHANGES, PMDD AND MENOPAUSE

HORMONES: STIGMA AND DOING WHAT IS RIGHT FOR YOU



Edited by Alice Wagstaffe, shot by Alida Bea, produced by Tara Scott 

Words by Rachel Ramsay 

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